People

Apparently Steve Jobs Parks in Handicap Spots

art — Fri, 03 Oct 2008 08:01:47 -0400

It appears that capturing snapshots of Steve Jobs' Mercedes SL55 AMG parked in a handicapped spot at One Infinite Loop is quickly becoming one of the ultimate "must have" photos on a tour of "The Mothership".

I guess when you're that rich, the handicapped don't matter...

Two people raising funds for Accelerated Cure Project

art — Tue, 30 Sep 2008 10:02:07 -0400

A man whose wife has suffered for 15 years with a debilitating disease is walking across England to raise £60,000. Andy Monk hopes that his 5,262 mile effort to 722 newspaper offices and radio stations will help scientists to rapidly research a cure for MS – which he has seen take hold of his wife.

Jim Dunlap, a Fort Collins man living with multiple sclerosis, rode in the four-day MS Global ride in Vail last weekend. Money raised at the event will help establish an MS Repository Collection site at the Rocky Mountain MS Center in Denver.

LDN Story

Graham(UK) — Fri, 29 Aug 2008 09:43:47 -0400

More anecdotal evidence of benefit of LDN, this time from the UK. Interestingly the UK MS Society aren't so disparaging about LDN as they used to be.

Maybe we don't need to worry too much about brain atrophy

art — Sat, 05 Jul 2008 09:03:59 -0400

One of the big worries people have with MS is the brain atrophy. Here's a story about a girl who had half of her brain removed and was largely able to cope afterward. We have considerable backup in our heads.

Run Brad Run! Accelerated Cure Project supporter to run 50 marathons to cure MS

sbnels — Thu, 19 Jun 2008 18:34:58 -0400

Venture capitalist/blogger/super hero Brad Feld has pledged to raise $100,000 through his latest venture: Run 50 marathons in 50 states before he turns 50 (12/1/2015).

As an added bonus, an email management company called Return Path has pledged $1,000 to Accelerated Cure Project for every marathon Brad runs.

Follow Brad's progress and make a donation here.

MS Scamming

art — Wed, 18 Jun 2008 14:22:44 -0400

Here we have two MS scams going:

1. 12 year-old girl uses MS Society as false benefactor of a scam selling low price season passes. Young entrepreneur with an evil twist.

2. Advanced Cell Therapy promised a 90 per cent success rate and claimed one wheelchair- bound victim walked again after receiving their MS therapy. We've been reporting on this organization for a while, it's good to see the FBI is after them now.

Remember: if it sounds too good to be true, do your homework, it probably is.

Inspired to walk 3,500 miles for Wife

art — Fri, 06 Jun 2008 15:31:39 -0400

Andy Monk who runs the This is Folkestone (UK) website is hoping to raise lots of vital cash for MS charities by trekking 3,500 around the country.

He said: "I am planning a sponsored walk to every Newspaper office and Radio Station in England, about 3,500 miles all told, to raise crucial funds for two Multiple Sclerosis Charities - The Accelerated Cure Project, and The British Trust for the Myelin Project.

Lorenzo Odone (of "Lorenzo's Oil") dies at age 30

hollie — Thu, 05 Jun 2008 17:27:11 -0400

Lorenzo Odone, who was affected by the genetic demyelinating disease X-linked adrenoleukodystrophy, has died of pneumonia at age 30. He was diagnosed with the disease as a young boy, which moved his parents Augusto and Michaela Odone to put their lives on hold and develop a cure.

Their work resulted in the development of a therapeutic oil which halted progression of the disease for Lorenzo and has been shown in clinical trials to prevent or delay onset in other boys with the genetic defect. The movie "Lorenzo's Oil" portrays their efforts to cure their son. Augusto and Michaela also founded The Myelin Project, a nonprofit that has funded research into multiple demyelinating diseases including MS.

MSer to Walk Fifty-THree Miles to Raise Money for Research

sammyjo — Mon, 05 May 2008 19:38:31 -0400

Vicki Finlayson could barely walk from one room to another before Low Dose Naltrexone (LDN) gave her the victory over the debilitating effects of MS.

Now, Ms. Finlayson is planning to walk fifty-three miles on may 19th to raise funds and awareness for researching the efficacy of LDN in treating MS.

For more information about LDN, visit ldners.org

One man's tale of stopping his MS medication

art — Tue, 08 Apr 2008 11:43:41 -0400

Stuart Schlossman writes up his tale of what happened when he took a drug holiday. Your milage may vary.